Cystinuria: How to Live with Your Condition and Minimize Cystine Kidney Stone Formation

According to the National Institutes of Health, approximately ten percent of Americans will experience kidney stones at least once in their lives. More than half of those suffering from kidney stones have a condition called Hypercalciuria, a condition where the body consumes too much calcium and the load cannot be handled by the kidneys. This excess calcium is expelled in the urine and this knife can form kidney stones. Because cystine stones are so rare, those who suffer from cystinuria often receive incorruptible unless the plan is to treat the damage to our stones, when they assume all the stones, by which too many genetic disorder where the kidneys cannot handle normal levels of amino acids, specifically cystine. Cystine is a solid material. If well hydrated, this cystine can sometimes dissolve, although this solid cannot be drinkable, there cannot be enough water. to dissolve and form cystine in serrated golden-colored stones to form or to re-form in a month or two without the intervention of doctors, without taking it in a large amount of water to take medicines that dissolve cystine, such as Cuprimine, Thiola or Capoten, though. not without side effects, such as nausea. Potassium citrate can be used to prevent the patient’s urine from becoming too acidic in the first place, so there is less chance of stones forming.

When I was first diagnosed in February 2005 through August 2005, I had passed one hundred cystine stones in myself with sizes varying from 1 mm to 4 mm and four ureteroscopic surgeons and subsequent ureteroscopic placements of the ureter despite having consumed inhuman amounts of water. where he had to rise and go to bed four times in the night. One of the surgeries left me with a blood clot. In those four months I considered the document in pain tolerance, but finally I had enough and two urologists suggested. Either I try one of the above medications or I could see a dietitian to help me transition to a fully vegan diet, meaning no animal protein whatsoever them and all dairy products.

I am hyper sensitive to most drugs that have “mild” nausea as a side effect. I took the most pain medication pain to treat the pain as the pain left me praying to a clay god for hours at a time. where most others are not affected. Knowing this, I refused the medicine and made an appointment to see a dietitian.

Gibbs confirmed in the medical community that since the acid amino cystine is a byproduct of animal protein, the natural solution would be to put the sufferers in a strict vegan diet. To date, the solution is not recognized.

A self-confessed protein lover, I enjoy this diet with difficulty. At that time in Japan I was so lucky to have soy-based products, including tofu, in constant supply. This was helpful because as I did my research, I found that carbohydrates are good and I probably consume more carbs than I usually do and that doesn’t seem too healthy to me. In fact, shortly after the flight I craved carbohydrates. But in soy milk, many vegetables and fruits, tofu and luxurious pre-packaged vegan meals.

Despite my crankiness, I woke up one day feeling rather lonely, like an old friend who hadn’t called in a while. I realized that I had not felt the pain of a kidney stone for over a month, which was in my memory. Against my doctors orders I started drinking only normal amounts of water and despite not being overly hydrated, I still accumulated stones! I’m excited and pain free for the first time in months since I missed all my new best friends in the OR.

It’s been a year and a half since my last hand and kidney stone. I’m still not drinking the right amount of water, but a vegan diet my body seemed to reboot to the point where I relaxed the diet and still remains relatively stone free. I haven’t passed a stone in about a year, although a recent CT scan observed a stone in my kidneys two months ago, but I still haven’t felt it and it can be dissolved even now.

I highly recommend that cystinurics try a vegan diet, but if that is too burdensome for the patient, they still have ways to check stone formation.

First, don’t listen to those who tell you to avoid coffee. my urologist told me that coffee is fine but try to have one glass of water for every cup of coffee you consume since caffeine can dehydrate you. I switched to mochas with soy milk and they were rather good and satisfied my coffee craving before work.

Then people will talk about drinking cranberry-juice”>juice” as they drink. This is useful in people with calcium-based stones, but is contraindicated in those with cystine stones, as the acid in the juice can aggravate and accelerate the development of these stones. It is better to strain it in lemonade new water or lemonade so that the specific acid can dissolve our stones, more or less. -boring way to stay hydrated. Also Oolong tea is useful. My husband’s friends suggested that I drink beer at the height of my kidney pain to help the stones pass faster and while I don’t condone drinking to self-medicate, my urologist didn’t have a problem with this method when I brought it up. her. Again, he suggests the one beer to one glass of water rule.

Although stones can cause excruciating pain, it’s good to get up and walk or swim to get rid of the stone out of motion and instead stop muscle spasms in your ureter.

Then, don’t overuse the pain medication, and take it as soon as you start feeling pain or you will have to work harder later. While most doctors would hand out Percocet for kidney stone pain, I was partial to a non-narcotic anti-inflammatory called Toradol. If you’ve ever rushed to the ER for stone pain, this medicine will sound familiar. He is surprised at the stone and kidney pain. While it is usually administered intravenously, don’t be afraid to ask for it in pill form for home use. I now take it regularly for a chronic inflammatory condition in my back and it is an all around good substitute for Naprosyn or Motrin. Toradol does the same thing, but it’s in a different class of anti-inflammatory. Finally, if you need surgical intervention, be sure to go over all your options with a urologist, especially if you’re a woman. Noninvasive methods such as Lithotripsy Extracorporeal Collision Lithotripsy (ESWL) can be as easy in humans as shock waves placed outside the body over the general location of the stone, although in women, the stone site can be precariously close to our reproductive organs and shock waves can obliterate the viscera. My doctor wanted to go with a cytoscope, otherwise known as Ureteroscopic Stone Removal. With the patient under general or sometimes epidural anesthesia, the doctor will place a tube with a camera through the urethra into and beyond the bladder, and then into the ureter and possibly the kidney. Once the stone is located, the lithotripsy goes inside and breaks the stone. a small basket grabs the stones and pulls them out. Before the chamber tube is removed, a stent is sometimes placed to prevent infection and to relax the ureter to allow fragments to be expelled more easily. The stent is removed about a week later in the doctor’s office with local anesthesia while he is awake. Mostly painless but not fun. If you follow your doctor’s advice and the steps above, you may be able to avoid the site. Witness Even though I will have cystinuria for the rest of my life (and maybe pass it on to my kids, but it seems to have passed a generation in my family) I seem to be in full remission thanks to the homeopathic steps I took to improve myself. condition

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