With the pain and illness of having autoimmune diseases like Lupus, Connective Tissue Disease, Myofascial Pain Syndrome, Sjogren’s, Fibromyalgia, Diabetes, and dozens of others; there is pain, contempt, and destructive things that family members, friends, colleagues, and even strangers say and do to people with illnesses.
First of all, most of these diseases are called “invisible” diseases. They are not open to outsiders. They cannot see other diseases, and often even doctors cannot find definitive tests to diagnose them. Many are simply diagnosed by a combination of symptoms and common denominators in tests that are not necessarily a single disease. So sometimes some doctors can’t “see” the disease unless they have had the right tests, and family and friends don’t see the disease what you suffer internally.
In order to minimize diseases such as Fibromyalgia; had a problem Only recently have people learned about Fibromyalgia been able to prove the actual existence of fibromyalgia through brain function tests. Therefore there are many, even doctors, who do not believe that the disease is real. Many of them have it in them that people are diagnosed with the disease, as fictitious or hypochondriacs seeking the idea of the disease. (if they were hypochondriacs, they would still need medical attention and deserve compassion).
To give you an idea of what to say, I have collected comments from people suffering from autoimmune disease. They are harmful, they are widespread. Sometimes it makes people crazy; but often brings them to tears. Men and women are subjected to this abuse of words; But whoever is afflicted with any of these invisible diseases, is subjected to these inconsiderate and harsh things;
You sleep too much ” ; ” You don’t want to go anywhere ” ; ” Everything around ” ; , Vitamin C, D, coffee, eat healthy, aurei, etc. taken by autoimmune patients);
Then the pain really begins to set in;
“It is done in your head”; “Others are still working worse than you”; “You are lazy and quiet, and therefore you cannot do as much as before.” A financial person for college aid; “why do you want to go to school when you’re going to die?”; “I’ll snap out of it!”; “Get out of that parking lot immediately!” “But see the good;” “please forgive me.”; “I haven’t decided to see mom this summer because I can’t take a weak drama, so call me when you get your drama.” “Why don’t you take off your lazy, fat ass and something.”
Some fall under the category of useless and good nonsense;
“The problem today is that patients do a little research on the internet and think they are Dr.s. I think you have to find another rheumatologist.” “Your illness is not serious, you are using it as an excuse not to marry.” “Mom’s in the ICU, she’s doing it for attention.” “You must acquire life”; “You really need to consider what will shrink”; “You must begin”;
The rest were incredulous, because they were to be admired, to be shared;
You know what’s really bad for you is all that Diet soda you drink.”;” I married a wife when you were younger, no one wants you anymore.”: “Now don’t you want to stay out of your marriage?”: “Why don’t you work quietly, since you don’t want to live any longer?”; “Is Wolf real?” you all complain.”; “You don’t need to go to the doctor for anything”; “You’re so lucky, if it could be worse”; “You’re lucky, you live a life of luxury and you don’t have to work anymore.” breaks and sick?); “you know who that blood is”; “You think he offered the right blood? You hate going down with someone else.”; “You’re so lucky, with all those drugs, you don’t have to sleep”; “You’re just a baby”; “You don’t know what real pain is”; “Why are you hurt today, when yesterday you were well?”; “You will be healthy enough to see”; “Don’t look bad”
Sometimes you hear direct, repeated, sometimes comments; sometimes other parts of your life are attacked as well. It seems that all your life is an open time for all people to talk to when they are sick. No “political correctness” rules anymore. People say what they want about any aspect of your life. They do not admonish, judge, criticize, reproach. It is very unfortunate that people go to such lengths to make someone who is already so seriously ill feel even worse. The people who approached them and thought they cared for them, thought they were helping them. It happens every day, however, to name spouses, children, siblings, parents, friends, family, bosses, confidants, doctors, nurses; they do. It’s hard to know where to turn for help. Here are the last expressions of the common popular groups;
“You look good”; “Why do you act like this?”; “Man, you are a complex person.” “Well if you don’t want to get sick of dating people, you’re sick because you’re gay.” “Well I think you’re just a pain killer and depressed.” (day 4 advil); “There is nothing wrong with you, you just need more”; “It would be better if you lost weight”; “She is not sick, she is just idle”; “We were so happy to find something that was with you, we thought you were lazy and sorry.” My God, you are such a coward. “You need to look into foster homes, no one will want you now.”; “God has done this to you, because you have abandoned the church.” “The sun is good for you, you should go out more.” “Don’t look like you’re in pain.” “On a hypochondriac scale you would consider it a 10”
He does not stop with words. The trick is always when he’s making noise when he’s trying to rest or fall asleep. Hune came into the room and pushed things so hard that you woke up. Those who do not want to sit in the chair more comfortably, because they do not recognize in pain. Hide the spindle or the stick. Abstain, flush, refuse, refill medication. Refusal of medical care. The manager orders the officer to “begin the process to remove” the employee with autoimmune diseases. A doctor who scolded a patient for asking him to play music on a piano because he couldn’t distinguish sounds. People are clamoring for someone to use the cart at Walmart because they think they don’t need it.
You know what; no one says a word when some kid cries his head off in a restaurant while everyone is having a nice quiet lunch is trying So when did people become weak during the open season? You do not know what kind of pain and sickness goes with these diseases; and hopefully never will be. My simple grandmother used to tell me when I was a child. “Mind your own business. Show other people compassion.”
